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Showing posts from June, 2024

Garden display during Bo'ness Fair

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Raising awareness for Vasculitis and for my petition to change NHS Forth Valley's policy on out of area referrals With Bo'ness Fair only a few days away, and with the intention to do a Outside the Box tour of Forth Valley, I have created a basic garden display to help get this kickstarted. I will be raising awareness for Vasculitis and also for my petition to change NHS Forth Valley policies on Out of Area Referrals and on how specialists (with no expertise in treating Vasculitis) are assigned to Vasculitis patients. The garden display shows a person chained to a heavy block, highlighting that NHS Forth Valley have to give their permission before I can be allowed to travel to an adjacent health board for treatment. No travel without NHS Forth Valley's permission. The pine box is going to be used for the Outside the Box Tour of Forth Valley. It is portable and can be dragged around. It catches your attention and is useful in holding the banner. If I can, I hope to tour some ...

Outside the Box Tour of Forth Valley

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 Its just 4 more days until the Bo'ness Fair on Friday. The Thursday before that is typically the day that everyone walks around viewing the displays that people have created. To make the most of this, I have created a temporary garden display which publicises my petition for change at NHS Forth Valley. After the Fair, the plan is to tour the Forth Valley area talking to people and asking them if they will support my cause. The  Outside the Box Tour of Forth Valley This will hopefully provide more names for my petition, identify some people that are having a similar experience with NHS Forth Valley and will also raise awareness about Vasculitis. As a secondary benefit, it will take me outside my comfort zone and get me communicating with people, it should increase my fitness and help me to shed a few pounds (currently 10st 11.5lb). Petition page at -  https://forms.gle/sQwgwVU4VkRYpHay7 YouTube channel at -  https://www.youtube.com/@AllanDiamond

Petition Post

Please support my petition for NHS Forth Valley policy change Petition Page Please follow this link to go to my petition page:-  https://myvasculitisrelapse.blogspot.com/p/petition.html More information For any other information, follow this link to my links page:-  https://myvasculitisrelapse.blogspot.com/p/links.html

Open letter to Director of Public Health at NHS Forth Valley

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 This is the letter that was sent to Dr Graham Foster, Director of Public Health, NHS Forth Valley

Had a break, now back to it

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Monday 3rd June 2023 Last post follow up The LCTF post was slipping off Facebook because it had a link in it. After posting without the link it posted without a problem. Total signatures now sitting at 167 but I will need to check for any duplicates, so may be less than this. A break away from it all Managed a break away from all this at the weekend. Visited the Scottish Vintage Bus Museum and had a ride on some old busses and a couple of narrow gauge trains. A refreshing break away from the campaign, but now its time to get things going again. The video from the bus museum is now on YouTube at ... Campaign update No responses received from NHS Forth Valley via post or email, so I must need a louder voice. Keep up the support and help me receive treatment for my condition - sign my petition here:  Petition Link