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MY FIGHT TO TAKE VASCULITIS FROM RELAPSE INTO REMISSION

My first relapse arrived in February 2023 and since then, I have been battling with NHS Neurology consultants to try to persuade them to provide me with the only course of treatment that previously worked. I believe that Vasculitis patients should be provided with a standby Relapse Treatment Plan once they are confirmed to be in remission. The reason for this is that with Vasculitis, once you are in remission you will fall into relapse, and you need that Relapse Treatment Plan ready to go.

Open letter to Director of Public Health at NHS Forth Valley

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19.6.24

This is the letter that was sent to Dr Graham Foster, Director of Public Health, NHS Forth Valley

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Blood pressure is stopping everything now

5.8.25

Last month, I had two appointments that had to be stopped because my blood pressure readings were too high to safely proceeded (230/120). The first of these appointments was at the start of the month and was for an endoscopy, which I wasn't too heartbroken about it being cancelled, but I did go to see my GP afterwards, to see what he could do to ensure the next one would go ahead. My GP wrote an email to a consultant he knew of in cardiology, who may be interested in my "interesting" case. He also doubled up my dose of Propranolol to 2 x 40mg / day. This only lasted for a couple of days as I started feeling very unwell, and couldn't keep out of the toilet, so back down to 2 x 20mg/day for me. The following week was my appointment with the respiratory lab, and once again the same thing happened. After about 20 minutes of setting up, my blood pressure was checked and again it was far too high to consider doing any exertion, so the appointment was cancelled. A few days...

How safe would I be if I was treated at NHS Forth Valley?

20.8.24

Created a new page that may have the answer to this question. Click the link below to open the page. https://myvasculitisrelapse.blogspot.com/p/monitoring-performance-and-managing.html

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