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Showing posts from May, 2024

Shared petition link with Vasculitis UK and the Lauren Currie Twilight Foundation

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Asking for support from fellow Vasculitis sufferers This morning before starting work at 7 am, I managed to add a post to the Facebook groups of the Lauren Currie Twilight Foundation and Vasculitis UK   to ask for support for my petition from their members.  As the morning progressed, my first new "signature" arrived just after 8 am and by 7 pm I had received 15 additional names supporting my cause. This brings the total for the Google Forms petition record up to 117 names. Additional messages of support My petition also gives the participant, the opportunity to add any additional words of support and I was very pleased to see so many additional support messages added in. I have noticed that the field used for the additional support messages is restricted in length and some of the messages were cut off. I am tempted to try to extend this but as there is a risk that the petition form may become corrupted if I change it now, it's best to keep it as it is. A big thanks to e...

Wrote an open letter to the Director of Public Health for NHS Forth Valley

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 Tuesday 28th May 2024 Created a new Blog series using Blogger.com to hold the goings on of my journey to receive treatment for Vasculitis. This is the first post I have created using Blogger.com and if I can, I will add some earlier time entries to show the step by step progress before I got to this stage. I initially created a petition using change.org but that created a very unfriendly user interface in my mind, and would be very off-putting if someone had sent the link to me. I suspended that petition and created a new one using Google Forms, which I am still using now. The only thing missing from the Google Forms petition is a checkbox to allow supporters to indicate if they are a Dr (PhD) or not. I will attempt to add this feature in today to the form and hopefully it will not corrupt all of the results obtained so far. Yesterday, the petition support from the Google Forms page on it's own reached 100 supporters. I have now produced an open letter to Dr Graham Foster to infor...